I am looking forward to reading more!
You have spoken the words that I can’t express myself…today I told my husband “I want my life back” feeling the loss of the life I once had. I’ve experience everything that you had, felt the same way, lost future I worked so hard for…and feel so exhausted to talk to friends on the phone, there is nothing in common anymore to share. My hair falls in my food, in my toothbrush, I’m tired of covering the bold spots, and it has cross my mind to shave what’s left of it. Then you wrote me a message on IG and I just read your blog and I can’t imagine being so young and so sick, I just celebrated my 64 birthday, I was diagnosed with MCTD 6 years ago after years of being sick and being dismissed as “all in my head” I get you and pray for you and all the young girls like you…
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I don’t know if you are still a patient at Mayo, but I live and work in the area and am also dealing, and not always well, with chronic illness. If you ever need a good laugh or cry please feel free to contact me. You are not alone.
I’m trying to be, they’re just being difficult. 😉 Oh my goodness. Find me on Facebook!!
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